I am not very good at updating my blog, as you can tell it's been two months since my last post. A lot has happened since then. We have had two appointments in Denver with specialists, along with my regular OB appointments with my doctor here in Gillette. In September we had another ultrasound that showed Isabella now has hydrocephalus, which is water in/around the brain. We weren't completely surprised with this finding, since about 80% of babies with Spina Bifida develop this condition, but we were disappointed. We also met with the pediatric neurosurgeon that will be taking care of our baby when she was born. We really felt comfortable with her and she answered a lot of our questions on what to expect once Isabella is born.
Last week we had another ultrasound in Denver, which showed that Isabella is growing as expected and nothing else has changed. Which is such a relief we didn't get any other upsetting news. We also scheduled my c-section date. This will take place on December 22nd, and Isabella will go into surgery on the 23rd. The only purpose of this surgery is to prevent infection by closing the opening of her spine, it will not fix or correct any damage that has already been done. She may or may not need shunts in her brain to drain the excess fluid. We will just have to wait and see what happens after she is born. Unfortunately, from here on out it will be a waiting game with our baby. We won't know until she gets older what her functioning will be like (ie. level of paralyzation, walking, bowel/bladder function, etc.).
I have also been on bedrest for the past 3 weeks since I went into preterm labor at 31 weeks. I was in the hospital for several days on IV fluids to stop contractiongs. It has definitely been hard but I know it is worth every minute of it. She doesn't need to be preterm on top of all the other problems she will have when she is born.
I feel so blessed that we are getting the opportunity to raise this precious little miracle. I still have periods of "why me" but not as often as I did at the beginning. I know she isn't an accident and is being given to our family for a reason. She is going to bless our lives beyond our level of imagination right now, along with the other people that are privileged to be around and know her. I can't wait to hold this beautiful baby girl!
Yea! you finally let me see it, and you finally were able to get it all posted! I love the pics! who ever scanned them for you is a true friend:)
ReplyDeleteHi Megan,
ReplyDeleteThank you for sharing your story. I just noticed on your facebook a slight mention as to what you have been through and wondering how I can help from so far away.
Isabella is so blessed to have you and Harvey as her parents! I know that she will bring such joy to your lives! Trials are no fun, but at the same time they bring such enlightenment and Joy that we wouldn't have otherwise known.
We will be keeping you, Isabella, and the rest of your family in our prayers!
Love and Miss ya!
Becky
I've been wanting an update - so glad you did this post. You're in my prayers. I truly know that you will be blessed with miracles - in what form, we don't choose, but always they are there. What a sweet little girl - I can already feel that. Anyway, thanks for keeping us all in the loop so we can be specific in our prayers.
ReplyDeleteIsabella is truly a miracle. Your family is constantly in our prayers! We love you all!
ReplyDeleteYou are for sure in our prayers. I'm glad to know about this blog, I ask your parents when I see them about how you guys are doing, but I don't see them very much. Good luck with the rest of your pregnancy. P.S. Great name choice, although ours is Isabelle, they're pretty close! We love you guys!
ReplyDelete