Wednesday, July 6, 2011
Long overdue post!
So much has happened with our family that I don't even know where to begin. All I know is that we have had many changes the last year with Belly and our family. Bella currently is still taking 6 pills a day for her seizures, she has to be cathed 4 times a day, takes meds for her bladder and also a daily antibiotic to help keep the UTI's away. She still gets physical therapy 2 times a week and occupational therapy once a week, along with the therpay we do with her at home. She has her braces and we are working on her crawling so it becomes more of a 4 point crawl, and we are in the process of getting her a stander and possibly a wheelchair in the near future. She still goes to the spina bifida clinic several times a year in Denver and also goes there probably once a month for specialized appointments and procedures. Even though it is busy taking care of her we wouldn't change a thing. Our life is what it is and it cannot be changed, nor would we want it any different. Bella is who she is because of all the challenges in her life that she has overcome and what she will overcome in the future.
Our family had an awesome opportunity this past week to go to California and attend the National Spina Bifida Conference which was held at the Disneyland hotel. We were able to meet a lot of families who are going through the same things we are and also talk with older children and adults with this condition. While at times it got overwhelming seeing all the wheelchairs and walkers it was a good eye opener on what to expect in the future. There were so many classes being offered that we weren't able to attend them all. We received great information from leading specialists around the nation. We also met some amazing kids and parents. The conference lasted 3 days, we then spent an extra 4 days going to Disneyland, Six Flags, and Universal Studios with our family. It was a great vacation and we built some memories that will last a lifetime.